As someone who has had two close family members diagnosed in recent years with rare diseases I support rare disease day!
Rare conditions/diseases are individually uncommon but collectively there over 6,000 conditions/diseases that will affect 1 in 17 people in the UK.
1. Rare diseases do not get as much research funding.
2. Rare diseases have groups of even rarer diseases, which lack even less research.
3. Medical professionals at times are unsure how to treat sufferers due to e.g. lack of treatments, lack of awareness of symptoms, no cure.
4. Rare diseases have less formal support groups funded and awareness raised.
5. Rare diseases have a higher mortality rate.
6. Sufferers and family members at times left struggling, fearful of their future.
Please kindly support Rare Disease Day!
Source: https://www.linkedin.com/feed/update/urn:li:share:7036290083787821057
